Practical Supports
Emergency Care for Patients with Mast Cell Disorders Brochure, (The Mastocytosis Society USA)
Emergency Room Protocols – a handy reference guide for patients with Mast Cell Disorders, (The Mastocytosis Society USA)
Mastocytosis & Mast Cell Activation Syndrome Information Pamphlet for patients, care givers, and medical professionals, (Mastocytosis Society Canada)
Mast Cell Action (UK)
Navigating MCAS Together (Mast Cell Action)
Resources for Medical Professionals (Mast Cell Action)
Getting Help (Mast Cell Action)
NHS – Long COVID Mast Cell Activation Syndrome (UK MCAS info)
Live Well with Chronic Illness
Dr. Claire Taylor (UK – Long-COVID focus)
The AIM Center: Dr. Lawrence Afrin
The AIM Center: Dr. Tania Dempsey
Sandra DenBraber activated charcoal masks
Stickman Communications (tools to help communicate to others about your symptoms, health issues, and needs – for all ages)
Safe Cleaning Products, Women’s Voices for the Earth
Managing your Environment, (Mast Cell Action)
Ambient Soundscapes & Library (tools for your personal toolbox for managing stress, helping with sleep, exercise, mindfulness, & more)
Education & Training (for medical professionals, non medical professionals, therapists, teachers, families, individuals who want to learn how to best support those whose lives are impacted by mast cell activation disorders. 100% online. Pick the training level that’s right for you.)
>> More Links (household, clothing, cooking, safer products…)
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About Mast Cell Disorders
video: The Root Causes of Mast Cell Disease, Dr. Lawrence Afrin
video: No Allergy but Still Reacting, Dr. Anne Maitland
website: Mastocytosis Society Canada (MSC)
website: Mast Cell Action (UK with MCAS focus)
article: “The Mastocytosis, MCAS, and IA Patient Experience,” MSC
video: Understanding Mast Cell Activation Disorders, National Institute of Allergy and Infectious Diseases (NIAID)
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Websites
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Research
Lawrence Afrin, MD (on mast cell activation and MCAS)
T.C. Theoharides, PhD, MD (extensive research publications on mast cells & mast cell activation related illnesses including MCAS, CFS, IBS, fibromyalgia, arthritis, migraine, MS, inflammation, autism, and more)
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Toxins in our Lives
Invisibles: Plastic Inside Us, orbmedia.org
Deep Clean: What the cleaning industry should be doing to protect your health, WVE
Tips on avoiding toxic chemicals, WVE
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Articles
“Mast Cell Activation Syndrome (MCAS): A Hidden Epidemic,” by Tania Dempsey, MD | download pdf
“Diagnosis of Mast Cell Activation,” by Lawrence Afrin, MD et al
“Mast Cell Activation Syndrome: An Alert to Psychiatrists,” by Judy Tsafrir, MD
“Atopic Conditions in Search of Pathogenesis and Therapy,” by T.C. Theoharides, MD (an important article on the role of mast cells in MCAS, MCS, CFS, fibromyalgia, asthma, and more)
“Could the Brain’s Mast Cells be Causing Chronic Fatigue Syndrome,” by Cort Johnson (a review of Dr. Theoharides’ published research)
“Chronic Fatigue Syndrome and Mitochondrial Dysfunction,” by S. Myhill, N. Booth, and J. McLaren-Howard
“Mast Cells and Irritable Bowel Syndrome: From the Bench to the Bedside,” by Lei Zhand, Jun Song, and Xiaohua Hou
“Time will tell about mast cells: Circadian control of mast cell activation,” by A. Nakao and Y. Nakamura
“Contaminating our Bodies with Everyday Products,” by Nicholas Kristof (NY Times)
“Not Just Dirt: Toxic Chemicals in Indoor Dust,” the National Resources Defense Council | download pdf
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Blogs & Sites
Environmental Working Group (EWG)
Grassroots Environmental Education
My Chemical-Free House: A Guide to Building a Chemical-Free, Mold-Free House
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Books
Understanding MCD: A Therapist’s Guide to Long-COVID, Mast Cell Activation Syndrome (MCAS), Mast Cell Disorders (MCD), Chemical Sensitivities & Environmental Illness (Roselle P. O’Brien, LMHC)
Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity (Lawrence Afrin, MD)
Chemical Sensitivity, (Sherry Rogers, MD)
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Education & Training
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CELACare Eco-Health, Inc.
CELACare Eco-Health, Inc. is not endorsing any of the above links or their content and is providing these links as informational resources only
